“Rare Condition, Resilient Spirit: Owen Masterson’s Story”

On September 17, 2017, Owen Masterson was born in Missouri, USA, with a rare condition called acalvaria, which results in the absence of facial and skull bones. His parents, Tom and Jessica, were informed that Owen had minimal chances of survival. Even before his birth, doctors had anticipated that Owen might not survive in the womb or could face trauma during delivery, leading them to suggest the possibility of abortion.

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Owen’s condition came to light during an ultrasound at 24 weeks of pregnancy when doctors were uncertain about the coverage of his brain by the skull. Following consultation with an ultrasound specialist, Tom and Jessica were told about Owen’s “very abnormal brain development,” although a specific diagnosis of the condition remained elusive. By the 27th week of pregnancy, they received confirmation that Owen had acalvaria, a condition with low chances of survival.

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Given the doctors’ prognosis that the baby was unlikely to survive, the mother was advised to consider terminating the pregnancy, involving the abortion of the baby.

Remarkably, just a day and a half after his birth, Owen was allowed to go home, defying the medical community’s expectations with his robust survival. Despite facing challenges such as an ear infection and a stomach virus during his first year, Owen remained in a relatively stable condition. However, he encountered difficulties in crawling and moving like other babies, necessitating the use of mobility aids.

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Owen surpassed the negative predictions made by doctors and thrived despite the challenges.

Nevertheless, Owen continues to face numerous challenges due to the absence of a skull, compromised health, and limitations in movement compared to other children.

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At the age of four, Owen’s health condition remains relatively good. Despite the absence of a skull and various birth defects, the resilient boy manages each day well despite the considerable challenges he confronts.

While doctors cannot provide a definitive prognosis on Owen’s lifespan, the family remains optimistic, finding hope in his demonstrated strength against adversity over the past four years. Tom and Jessica occasionally share pictures of Owen on their social media platforms, portraying him as a resilient “warrior” in whom they consistently place their trust.

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